LILAC DATA
The LILAC investigator data resource includes
- Datasets created for longitudinal analyses of LILAC cancer survivors and the age-matched cancer-free cohort, utilizing demographic, physical, mental, social health, and clinical event data collected under the WHI protocol and standardizing variables collected across time and data collection forms; and
- Surveys and medical record abstraction completed for LILAC cancer survivors, including summary cancer treatment information. LILAC cancer survivors included in these datasets were enrolled in the LILAC survivorship cohort during the first funding period (2/15/13 to 8/31/19). Medical records abstraction and self-reported (survey) data are based on LILAC datasets as of February 19, 2023.
Documentation
WHI LILAC Participants and Age-Matched Cancer-Free Cohort – Dataset Guide
WHI LILAC Data Preparation and Use Guide
LILAC Cancer Survivors and Age-Matched Controls
LILAC datasets are available to approved investigators through the WHI Data Repository. Please contact the WHI Help Desk with any questions.
| Dataset | Data Dictionary |
|---|---|
| Demographics | lilac_demographics_inv |
| Blood draw/urine collection | lilac_blood_urine_inv |
| Psychosocial and functional assessments (quality of life) | lilac_quality_of_life_inv |
| Objective physical measures | lilac_physical_measures_inv |
| Personal habits | lilac_personal_habits_inv |
| Clinical history at WHI enrollment | lilac_clinical_history_whi_enrol_inv |
| Clinical events | lilac_clinical_events_inv |
LILAC Cancer Survivors
LILAC datasets are available to approved investigators through the WHI Data Repository. Please contact the WHI Help Desk with any questions.
| Dataset | Data Dictionary |
|---|---|
| Clinical characteristics of cancer | lilac_cancer_characteristics_inv |
| Baseline questionnaire (Form 340) | lilac_form_340_inv |
| Annual survey (Form 370) | lilac_form_370_inv |
| Follow-up survey (Form 371) | lilac_form_371_inv |
| Breast cancer abstraction (Form 342) | lilac_form_342_breast_inv |
| Lung cancer abstraction (Form 343) | lilac_form_343_lung_inv |
| Colorectal cancer abstraction (Form 344) | lilac_form_344_colorectal_inv |
| Ovarian cancer abstraction (Form 345) | lilac_form_345_ovarian_inv |
| Endometrial cancer abstraction (Form 346) | lilac_form_346_endometrial_inv |
| Invasive melanoma abstraction (Form 347) | lilac_form_347_melanoma_inv |
| Leukemia cancer abstraction (Form 348) | lilac_form_348_leukemia_inv |
| Lymphoma cancer abstraction (Form 349) | lilac_form_349_lymphoma_inv |
| Chemo medications | lilac_chemo_meds_inv |
Data Collection Forms
- F340 v4 - LILAC Baseline Questionnaire
- F370 v2 - LILAC Annual Survey
- F371 v1 - LILAC Follow-up Survey
Abstraction Forms
- Breast cancer abstraction (Form 342)
- Lung cancer abstraction (Form 343)
- Colorectal cancer abstraction (Form 344)
- Ovarian cancer abstraction (Form 345)
- Endometrial cancer abstraction (Form 346)
- Invasive melanoma abstraction (Form 347)
- Leukemia cancer abstraction (Form 348)
- Lymphoma cancer abstraction (Form 349)
