Death Outcome Details (Form 124/120), Including All Discovered Deaths
| File Name | Data as of | Population | Data collected | One row per | Rows |
|---|---|---|---|---|---|
| outc_death_all_discovered_inv.dat | 2/15/2025 | CT+OS | Main, Ext1, Ext2 | Participant | 161,808 |
ID - WHI Participant Common ID Col 1
DEATHALL - All Discovered Death Col 2 Any report of death, regardless of consent status. Usage Notes: This variable, unlike the DEATH variable, does not censor deaths that occur after the participants's last consent period. Death was adjudicated for CT and OS participants through Ext1. In Ext2, death is only adjudicated for the Medical Record Cohort (MRC). Non MRC cause of death is determined by the initial cause of death form (form 120) and is augmented by NDI search (https://www-whi-org.s3.us-west-2.amazonaws.com/wp-content/uploads/Summary-of-National-Death-Index-Data.pdf). See the DEATHALLSRC variable for details about the death adjudication process.
DEATHALLDY - Days enrollment to All Discovered Death Col 3 Days enrollment to All Discovered Death
DEATHALLSRC - All Discovered Death ascertainment source Col 4 Usage Notes: During the core WHI study, central adjudications of Death were only done in the CT. In Ext1 deaths were centrally adjudicated for all participants. In Ext2, death is only adjudicated for the Medical Record Cohort (MRC). Non MRC cause of death is determined by the initial cause of death form (form 120) and is augmented by NDI search (https://www-whi-org.s3.us-west-2.amazonaws.com/wp-content/uploads/Summary-of-National-Death-Index-Data.pdf).
DEATHALLCAUSE - Cause of All Discovered Death Col 5 Usage Notes: "Unknown cause (not yet adj)" (code 100) are reported deaths that have not been adjudicated either because the adjudication is in process or WHI was unable to get sufficient documentation to perform an adjudication. In Ext2 only MRC deaths are adjudicated. Non MRC cause of death is determined by the initial cause of death form (form 120) and is augmented by NDI search (https://www-whi-org.s3.us-west-2.amazonaws.com/wp-content/uploads/Summary-of-National-Death-Index-Data.pdf). The cause of death values from the form 120 are a subset of the causes of death that can be determined from a form 124. If the form 124 was marked Other or Unknown cause of death the ICD code was used to determine cause of death (see the UNDRICD variable). A cross tabulation of DEATHCAUSE with UNDRICD should be examined to ascertain which ICD codes are included in each DEATHCAUSE category.
DEATHALLCAUSESRC - Cause of All Discovered Death ascertainment source Col 6 Usage Notes: Cause of death is usually determined from the form 124 underlying cause of death subclass question. If this question is answered other/unknown and has an ICD code, the cause of death will be determined from the ICD code. In the case of an Ext2 non MRC death, the cause of death comes from the form 120 subclass question and is augmented by NDI search (https://www-whi-org.s3.us-west-2.amazonaws.com/wp-content/uploads/Summary-of-National-Death-Index-Data.pdf).
ENDFOLLOWALLDY - Days enrollment to end of followup (including All Discovered Death) Col 7 Days enrollment to either the participant's uncensored death date (DEATHALLDY), the last NDI search date for the ppt or ENDFOLLOWDY Usage Notes: ENDFOLLOWALLDY should only be used for analyses utilizing All Discovered Death (DEATHALL) during WHI, Ext1 and Ext2.
ENDEXT1ALLDY - Days enrollment to the end of Ext1 followup (including All Discovered Death) Col 8 Days enrollment to either the participant's uncensored death date (DEATHALLDY), the last NDI search date for the ppt or ENDFOLLOWDY censored at the end of Ext1. Usage Notes: ENDEXT1ALLDY should only be used for analyses utilizing All Discovered Death (DEATHALL) during WHI and Ext1.
UNDRICD - F124 ICD-9/10 CM Code Col 9 ICD CM code relating to underlying cause of death. Usage Notes: These codes come directly from Form 124 – Report of Death. Early versions of form 124 recorded only ICD-9-CM codes, later versions could record ICD-9-CM or ICD-10-CM codes. The CCC reviewed some of the cases where the cause of death was “unknown” or “other” (values 8, 9, 88 or 99). In cases where a cause of death could be determined, this field has been updated with the corresponding ICD-10-CM code. Note: ICD-10-CM codes include a letter in the first position; ICD-9-CM codes do not. www.icd9data.com provides a handy reference for both version 9 and 10 ICD codes.
DTHAUTOPSY - F124 Was Autopsy Performed Col 10 Was an autopsy performed? Usage Notes: Not on early versions of form 124
DTHMEDRECS - F124 Documentation used - medical records Col 11 Documentation used for death adjudication: Medical records documentation Usage Notes: Not on early versions of form 124
DTHAUTOPSYREP - F124 Documentation used - autopsy findings Col 12 Documentation used for death adjudication: Report of autopsy findings Usage Notes: Not on early versions of form 124
DTHCERT - F124 Documentation used - death certificate Col 13 Documentation used for death adjudication: Death certificate Usage Notes: Not on early versions of form 124
DTHERREC - F124 Documentation used - ER record Col 14 Documentation used for death adjudication:ER record Usage Notes: Not on early versions of form 124
DTHEMSREP - F124 Documentation used - EMS report Col 15 Documentation used for death adjudication: EMS report Usage Notes: Not on early versions of form 124
DTHINFINT - F124 Documentation used - informant interview Col 16 Documentation used for death adjudication: Informant interview Usage Notes: Not on early versions of form 124
DTHF120 - F124 Documentation used - form 120 Col 17 Documentation used for death adjudication: Form 120 – Initial Notification of Death Usage Notes: Not on early versions of form 124
DTHNDISRCH - F124 Documentation used - NDI search Col 18 Documentation used for death adjudication: National Death Index search Usage Notes: Not on early versions of form 124
DTHCORREP - F124 Documentation used - coroners report Col 19 Documentation used for death adjudication: Coroner’s report Usage Notes: Not on early versions of form 124
DTHOTHERDOC - F124 Documentation used - other Col 20 Documentation used for death adjudication: Other Usage Notes: Not on early versions of form 124
DTHMI - F124 Coronary Death MI Col 21 Coronary death based on: Hospitalized myocardial infarction within 28 days of death Usage Notes: Not on early versions of form 124
DTHPREVANGINA - F124 Coronary Death prev Angina, MI or Revasc Col 22 Coronary death based on: Previous angina, myocardial infarction, or revascularization procedure and no known potentially lethal non-coronary disease process Usage Notes: Not on early versions of form 124. Revascularizations added after WHI closeout.
DTHCHD - F124 Coronary death CHD Col 23 Coronary death based on: Coronary heart disease (CHD) diagnosed as cause of death at post-mortem examination Usage Notes: Not on early versions of form 124
DTHCABGPTCA - F124 Coronary Death CABG/PTCA Col 24 Coronary death based on: Death resulting from a CHD-related procedure, such as coronary bypass grafting (CABG) or percutaneous transluminal coronary angioplasty (PTCA) Usage Notes: Not on early versions of form 124
DTHOTHER - F124 Coronary death other Col 25 Coronary death based on: Other (none of the above) Usage Notes: Not on early versions of form 124
DTHCORSUBCLASS - F124 Coronary Subclass Col 26 Coronary death subclassification: Usage Notes: Not on early versions of form 124
DTHCORTIMING - F124 Coronary Death Timing Col 27 Usage Notes: Not on early versions of form 124
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This file includes all reported deaths regardless of consent. Summary of National Death Index Data