This document can be used to prepare or evaluate feasibility of ancillary study proposals and paper proposals, but is NOT intended for publication.

Form 190 - COVID-19 Survey 1

File NameData as ofPopulationData collectedOne row perRows
f190_covid1_inv.dat3/6/2021CT+OSExt2Participant50,306
  • The cut-off date for this dataset is 12/31/2020. * See Psychosocial/Behavioral constructs for information about how the computed variables are constructed for main study forms 37 and 38, and follow-up forms 151, 151A, 151B, 155, 157, 158, 159, 160, 160P, 161, 190, and 191.
ID - WHI Participant Common ID
Col 1
NMissing
50,3060
F190CONT - Contact Type
Col 2
ValueDescriptionN%
1Phone5671.1
2Mail36,66772.9
4REDCap13,07226
F190VER - Version of Form (REDCap or Paper)
Col 3
Usage Notes:

For phone collections, both the paper and REDCap versions were used.

ValueDescriptionN%
190PPaper form36,67472.9
190RREDCap form13,63227.1
F190DAYS - F190 Days since randomization or enrollment
Col 4
NMissingMinMaxMeanStdDev
50,30607,8359,8458,714.76396.835
COMPLETEDBY - Form 190 completed by
Col 5

Who is completing this form?

ValueDescriptionN%
1Participant47,88295.2
2Proxy1,9383.9
Missing4861%
WELLBEING - Current level of well-being
Col 6

Please think about your current level of well-being. When you think about well-being, think about your physical health, your emotional health, any challenges you are experiencing, the people in your life, and the opportunities or resources you have available to you. How would you describe your current level of well-being?

ValueDescriptionN%
1Excellent4,9459.8
2Very Good19,21538.2
3Good18,39736.6
4Fair6,08012.1
5Poor9291.8
6Very Poor1790.4
Missing5611.1%
LIVINGCHNG - Living arrangement changed since March 2020 due to the COVID-19 pandemic
Col 7

Has your living arrangement, including the place where you live and the people that live with you, changed since March 2020 due to the COVID-19 pandemic?

ValueDescriptionN%
0No45,94691.3
1Yes3,4366.8
Missing9241.8%
MOVETOFAM - Moved in with other family
Col 8

Living arrangement: What has changed? Mark all that apply. I moved to live with other family members or friends.

ValueDescriptionN%
0No2,4144.8
1Yes3730.7
Missing47,51994.5%
FAMMOVEIN - Others moved in with me
Col 9

Living arrangement: What has changed? Mark all that apply. Other family or friends moved in with me.

ValueDescriptionN%
0No2,2764.5
1Yes5111
Missing47,51994.5%
SOMEMOVEOUT - Household members moved away
Col 10

Living arrangement: What has changed? Mark all that apply. Some household members moved away to limit the possibility of infection.

ValueDescriptionN%
0No2,6375.2
1Yes1500.3
Missing47,51994.5%
MOVEOUTSHARED - Moved out of shared housing
Col 11

Living arrangement: What has changed? Mark all that apply. I moved out of shared housing to limit the possibility of infection.

ValueDescriptionN%
0No2,7245.4
1Yes630.1
Missing47,51994.5%
CAREPROVCOMES - Care provider comes to help
Col 12

Living arrangement: What has changed? Mark all that apply. A care provider/companion now comes to help me.

ValueDescriptionN%
0No2,5905.1
1Yes1970.4
Missing47,51994.5%
CARENOCOME - Care provider no longer comes
Col 13

Living arrangement: What has changed? Mark all that apply. My care provider/companion no longer comes to help me.

ValueDescriptionN%
0No2,6905.3
1Yes970.2
Missing47,51994.5%
MOVETOFAC - Moved into care facility
Col 14

Living arrangement: What has changed? Mark all that apply. I have moved into a care facility.

ValueDescriptionN%
0No2,5445.1
1Yes2430.5
Missing47,51994.5%
MOVEOUTFAC - Moved out of care facility
Col 15

Living arrangement: What has changed? Mark all that apply. I have moved out of a care facility.

ValueDescriptionN%
0No2,7235.4
1Yes640.1
Missing47,51994.5%
LIVINGCHNGOTH - Other changes to living arrangement
Col 16

Living arrangement: What has changed? Mark all that apply. Other.

ValueDescriptionN%
0No1,3612.7
1Yes1,4262.8
Missing47,51994.5%
HOUSEHOLDN - How many people live in same household with you
Col 17

Including yourself, how many people live in the same household with you?

ValueDescriptionN%
1121,28942.3
2219,05837.9
332,8655.7
449331.9
55 or more1,2362.5
9Not applicable3,3906.7
Missing1,5353.1%
PRIVATEHOME - Live in private home
Col 18

Are any of the services and/or restrictions below part of where you currently live as a result of the COVID-19 pandemic? Mark all that apply. Does not apply. I live in a private home.

ValueDescriptionN%
0No11,46122.8
1Yes37,30374.2
Missing1,5423.1%
NOLEAVE - Residents not allowed to leave home
Col 19

Are any of the services and/or restrictions below part of where you currently live as a result of the COVID-19 pandemic? Mark all that apply. Residents are not allowed to leave their home/apartment/room.

ValueDescriptionN%
0No47,07393.6
1Yes1,6913.4
Missing1,5423.1%
NOVISITORS - Residents not allowed visitors
Col 20

Are any of the services and/or restrictions below part of where you currently live as a result of the COVID-19 pandemic? Mark all that apply. Residents are not allowed to have visitors.

ValueDescriptionN%
0No43,21085.9
1Yes5,55411
Missing1,5423.1%
NOLVEXCEPTEMERG - Residents not allowed to leave except for emergencies
Col 21

Are any of the services and/or restrictions below part of where you currently live as a result of the COVID-19 pandemic? Mark all that apply. Residents are not allowed to leave the property except for emergencies.

ValueDescriptionN%
0No45,60990.7
1Yes3,1556.3
Missing1,5423.1%
FOODDELIV - Food is delivered to home
Col 22

Are any of the services and/or restrictions below part of where you currently live as a result of the COVID-19 pandemic? Mark all that apply. Food is delivered to the home/apartment/room.

ValueDescriptionN%
0No43,09185.7
1Yes5,67311.3
Missing1,5423.1%
NORESTRICT - No restrictions on residents
Col 23

Are any of the services and/or restrictions below part of where you currently live as a result of the COVID-19 pandemic? Mark all that apply. There are no restrictions on residents.

ValueDescriptionN%
0No42,88885.3
1Yes5,87611.7
Missing1,5423.1%
FAMASSISTLIVING - Have family living in care facility
Col 24

Do you have any close family members living in an assisted living, skilled nursing, or nursing home?

ValueDescriptionN%
0No44,97189.4
1Yes4,3748.7
Missing9611.9%
VISITFAM - Able to visit family in care facility
Col 25

Are you able to visit them in their care facility?

ValueDescriptionN%
0No3,7297.4
1Yes4560.9
Missing46,12191.7%
C19EXPOSED - Ever been exposed to someone with COVID-19
Col 26

To your knowledge, have you EVER been exposed to another person who has been diagnosed with, or suspected of having, COVID-19 infection?

ValueDescriptionN%
1Yes, someone living with me3590.7
2Yes, someone outside of my home1,5213
3No, not that I know of47,69794.8
Missing7291.4%
C19DTHFAMFR - Has family member or friend died from COVID-19
Col 27

Has anyone in your family or a close friend died from COVID-19?

ValueDescriptionN%
0No47,07693.6
1Yes2,4915
Missing7391.5%
FEVER - Fever for longer than several hours or more, since March 2020
Col 28

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Fever.

ValueDescriptionN%
0No49,43698.3
1Yes8701.7
COUGH - Persistent cough for longer than several hours or more, since March 2020
Col 29

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Persistent cough.

ValueDescriptionN%
0No48,18795.8
1Yes2,1194.2
CHILLSSWEATS - Chills or sweats for longer than several hours or more, since March 2020
Col 30

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Chills or sweats.

ValueDescriptionN%
0No49,24997.9
1Yes1,0572.1
HEADACHE - Headache for longer than several hours or more, since March 2020
Col 31

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Headache.

ValueDescriptionN%
0No47,98495.4
1Yes2,3224.6
SORETHROAT - Sore throat for longer than several hours or more, since March 2020
Col 32

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Sore throat.

ValueDescriptionN%
0No48,98197.4
1Yes1,3252.6
HOARSE - Unusually hoarse for longer than several hours or more, since March 2020
Col 33

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Unusually hoarse.

ValueDescriptionN%
0No49,32098
1Yes9862
LOSSSMELL - Loss of smell for longer than several hours or more, since March 2020
Col 34

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Loss of smell.

ValueDescriptionN%
0No49,47698.4
1Yes8301.6
LOSSTASTE - Loss of taste for longer than several hours or more, since March 2020
Col 35

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Loss of taste.

ValueDescriptionN%
0No49,42498.2
1Yes8821.8
CHESTPAIN - Chest pain/tightness for longer than several hours or more, since March 2020
Col 36

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Chest pain/tightness.

ValueDescriptionN%
0No49,38998.2
1Yes9171.8
MUSCLEACHES - Muscle aches for longer than several hours or more, since March 2020
Col 37

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Muscle aches.

ValueDescriptionN%
0No46,52892.5
1Yes3,7787.5
ABDOMPAIN - Abdominal pain for longer than several hours or more, since March 2020
Col 38

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Abdominal pain.

ValueDescriptionN%
0No49,16297.7
1Yes1,1442.3
DIARRHEA - Diarrhea for longer than several hours or more, since March 2020
Col 39

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Diarrhea.

ValueDescriptionN%
0No47,93195.3
1Yes2,3754.7
CONFUSION - Confusion for longer than several hours or more, since March 2020
Col 40

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Confusion.

ValueDescriptionN%
0No49,35798.1
1Yes9491.9
MALAISE - Malaise for longer than several hours or more, since March 2020
Col 41

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Malaise-a general feeling of illness, discomfort, uneasiness.

ValueDescriptionN%
0No47,77595
1Yes2,5315
FATIGUE - Unusual fatigue for longer than several hours or more, since March 2020
Col 42

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Unusual fatigue.

ValueDescriptionN%
0No46,30992.1
1Yes3,9977.9
FATIGUESEVERITY - Severity of fatigue
Col 43

Unusual fatigue: How severe was this symptom?

ValueDescriptionN%
1Mild1,5893.2
2Moderate1,7603.5
3Severe4200.8
Missing46,53792.5%
SHORTBREATH - Unusual shortness of breath or difficulty breathing for longer than several hours or more, since March 2020
Col 44

Below is a list of symptoms that may be related to COVID-19. Some of these may also occur with other conditions such as allergies, colds and flu or when taking certain medications. Please indicate if you have experienced any of these symptoms for longer than several hours or more than is usual for you, since March 2020. Mark all that apply. Unusual shortness of breath or difficulty breathing.

ValueDescriptionN%
0No48,78497
1Yes1,5223
SHORTBREATHSEV - Severity of shortness of breath
Col 45

Unusual shortness of breath or difficulty breathing: How severe was this symptom?

ValueDescriptionN%
1Mild6431.3
2Moderate5971.2
3Severe1650.3
Missing48,90197.2%
C19STATEMENT - The following statement applies
Col 46

Which of the following statements apply to you?

ValueDescriptionN%
1Do not think I had it; no symptoms44,98489.4
2Suspected I had it; no medical care7741.5
3Called doctor; told to self quarantine3450.7
4Went to hospital due to symptoms6791.3
Missing3,5247%
C19TEST - Tested for COVID-19
Col 47

Have you been tested for COVID-19?

ValueDescriptionN%
0No39,80879.1
1Yes9,46818.8
9Unsure2980.6
Missing7321.5%
C19NASAL - Nasal swab test
Col 48

What kind of test(s) did you have? Mark all that apply. Nasal swab (testing for presence of the virus).

ValueDescriptionN%
0No1,2242.4
1Yes7,89915.7
Missing41,18381.9%
C19THROAT - Throat swab test
Col 49

What kind of test(s) did you have? Mark all that apply. Throat swab (testing for presence of the virus).

ValueDescriptionN%
0No8,19216.3
1Yes9311.9
Missing41,18381.9%
C19SALIVA - Saliva test
Col 50

What kind of test(s) did you have? Mark all that apply. Saliva test (testing for presence of the virus).

ValueDescriptionN%
0No8,83417.6
1Yes2890.6
Missing41,18381.9%
C19BLOOD - Blood test
Col 51

What kind of test(s) did you have? Mark all that apply. Blood test (testing for antibodies/immune response).

ValueDescriptionN%
0No7,96015.8
1Yes1,1632.3
Missing41,18381.9%
C19TESTN - Number of times tested for COVID-19
Col 52

How many times have you been tested?

ValueDescriptionN%
11 time6,60513.1
22 times1,6013.2
33 or more times9171.8
9Unsure1060.2
Missing41,07781.7%
C19POS - Tested positive for COVID-19
Col 53

Did any of these tests come back positive for a COVID-19 infection?

ValueDescriptionN%
0No8,57417
1Yes3220.6
9Unsure2280.5
Missing41,18281.9%
NASALPOS - Positive nasal swab test
Col 54

Which test(s) came back positive?

ValueDescriptionN%
0No580.1
1Yes2320.5
Missing50,01699.4%
SALIVAPOS - Positive saliva test
Col 55

Which test(s) came back positive?

ValueDescriptionN%
0No2830.6
1Yes70
Missing50,01699.4%
THROATPOS - Positive throat swab test
Col 56

Which test(s) came back positive?

ValueDescriptionN%
0No2680.5
1Yes220
Missing50,01699.4%
BLOODPOS - Positive blood test
Col 57

Which test(s) came back positive?

ValueDescriptionN%
0No2310.5
1Yes590.1
Missing50,01699.4%
C19HOSP - Ever hospitalized for COVID-19
Col 58

Were you ever hospitalized for COVID-19?

ValueDescriptionN%
0No2200.4
1Yes860.2
9Unsure40
Missing49,99699.4%
C19HOSPNIGHTS - Number of nights in hospital for COVID-19
Col 59

How many nights did you stay in the hospital?

ValueDescriptionN%
11 night10
22-3 nights120
34-6 nights310.1
47-13 nights190
514 or more nights200
9Unsure10
Missing50,22299.8%
INTRAFLUIDS - Received treatment of intravenous fluids
Col 60

What treatments did you receive? Mark all that apply. Intravenous fluids.

ValueDescriptionN%
0No190
1Yes630.1
Missing50,22499.8%
OXYGEN - Received treatment of oxygen, not requiring a ventilator
Col 61

What treatments did you receive? Mark all that apply. Oxygen through nasal (nose) prongs or facial mask, but not requiring a ventilator.

ValueDescriptionN%
0No190
1Yes630.1
Missing50,22499.8%
VENTILATOR - Received ventilator treatment
Col 62

What treatments did you receive? Mark all that apply. Invasive ventilation or ventilator (Breathing support through an inserted tube. People are usually asleep for this procedure.)

ValueDescriptionN%
0No780.2
1Yes40
Missing50,22499.8%
KIDNEYDIALYSIS - Received treatment of kidney dialysis
Col 63

What treatments did you receive? Mark all that apply. Kidney dialysis.

ValueDescriptionN%
0No820.2
1Yes00
Missing50,22499.8%
CARDIACPROC - Received treatment of cardiac or heart procedure
Col 64

What treatments did you receive? Mark all that apply. Cardiac or heart procedure, such as a coronary artery stent.

ValueDescriptionN%
0No810.2
1Yes10
Missing50,22499.8%
C19TRTMNTOTH - Received other treatment
Col 65

What treatments did you receive? Mark all that apply. Other.

ValueDescriptionN%
0No710.1
1Yes110
Missing50,22499.8%
ICU - Received treatment in ICU
Col 66

Did you require treatment in an Intensive Care Unit (ICU)?

ValueDescriptionN%
0No650.1
1Yes180
Missing50,22399.8%
ICUDAYS - Number of days in ICU
Col 67

ICU: How many days?

ValueDescriptionN%
1110
22-320
34-650
47 or more80
9Not sure10
Missing50,289100%
REMDESIVIR - Given remdesivir to treat COVID-19
Col 68

Were you given any of the following medications to treat COVID-19? Mark all that apply. Remdesivir.

ValueDescriptionN%
0No260.1
1Yes130
Missing50,26799.9%
HYDROXYCHLOROQUINE - Given hydroxychloroquine to treat COVID-19
Col 69

Were you given any of the following medications to treat COVID-19? Mark all that apply. Hydroxychloroquine or chloroquine.

ValueDescriptionN%
0No250
1Yes140
Missing50,26799.9%
AZITHROMYCIN - Given azithromycin to treat COVID-19
Col 70

Were you given any of the following medications to treat COVID-19? Mark all that apply. Azithromycin.

ValueDescriptionN%
0No180
1Yes210
Missing50,26799.9%
NONC19MEDS - Currently taking prescription medications not related to COVID-19
Col 71

Are you currently taking any prescription medications not related to COVID-19?

ValueDescriptionN%
0No5,71611.4
1Yes42,02083.5
Missing2,5705.1%
HIBPMED - Currently taking medications for high blood pressure
Col 72

Are you taking prescription medications for any of the following conditions? Mark all that apply. High blood pressure.

ValueDescriptionN%
0No10,15720.2
1Yes22,63145
Missing17,51834.8%
BETABLOCK - High blood pressure medication - beta blockers
Col 73

High blood pressure medications: Beta-Blockers (Examples: Atenolol, Metoprolol, Carvedilol)

Usage Notes:

Collected only on the REDCap version of the form.

ValueDescriptionN%
0No2,2714.5
1Yes2,7265.4
Missing45,30990.1%
CALCCHANBLOCK - High blood pressure medication - calcium channel blockers
Col 74

High blood pressure medications: Calcium channel blockers (Examples: Amlodipine, Diltiazem)

Usage Notes:

Collected only on the REDCap version of the form.

ValueDescriptionN%
0No2,3774.7
1Yes2,3194.6
Missing45,61090.7%
THIAZDIUR - High blood pressure medication - thiazide diuretics
Col 75

High blood pressure medications: Thiazide Diuretics (Examples: Hydrochlorothiazide, Chlorthalidone, Moduretic, Dyazide, Indapamide)

Usage Notes:

Collected only on the REDCap version of the form.

ValueDescriptionN%
0No2,6865.3
1Yes1,7433.5
Missing45,87791.2%
LOOPDIUR - High blood pressure medication - loop diuretics
Col 76

High blood pressure medications: Loop Diuretics (Examples: Furosemide, Lasix, Torsemide, Bumex, Ethacrynic acid)

Usage Notes:

Collected only on the REDCap version of the form.

ValueDescriptionN%
0No3,0946.2
1Yes7741.5
Missing46,43892.3%
ACEINHIB - High blood pressure medication - ACE-inhibitors
Col 77

High blood pressure medications: ACE-Inhibitors (Examples: Lisinopril, Enalapril, Ramipril, Captopril, Benazepril)

ValueDescriptionN%
0No9,95519.8
1Yes6,14812.2
Missing34,20368%
ANGIOTENSIN - High blood pressure medication - angiotensin receptor blockers
Col 78

High blood pressure medications: Angiotensin receptor blockers (Examples: Valsartan, Irbesartan, Entresto, Losartan, Candesartan, Olmesartan)

ValueDescriptionN%
0No9,64219.2
1Yes6,71613.4
Missing33,94867.5%
ALDOSTERONE - High blood pressure medication - aldosterone receptor blockers
Col 79

High blood pressure medications: Aldosterone Receptor Blockers Examples: Spironolactone, Eplerenone)

ValueDescriptionN%
0No14,50528.8
1Yes7561.5
Missing35,04569.7%
ALPHABLOCK - High blood pressure medication - alpha-blockers
Col 80

High blood pressure medications: Alph-Blockers (Examples: Terazosin, Doxazosin)

Usage Notes:

Collected only on the REDCap version of the form.

ValueDescriptionN%
0No3,3426.6
1Yes870.2
Missing46,87793.2%
HIBPMEDOTH - High blood pressure medication - other prescriptions
Col 81

High blood pressure medications: Other

ValueDescriptionN%
0No9,77919.4
1Yes5,75411.4
Missing34,77369.1%
DIABMED - Currently taking medications for diabetes
Col 82

Are you taking medications for any of the following conditions? Mark all that apply. Diabetes.

ValueDescriptionN%
0No28,22356.1
1Yes4,5659.1
Missing17,51834.8%
INSULIN - Diabetes medication - insulin injections
Col 83

Diabetes medications: Insulin injections.

Usage Notes:

Collected only on the REDCap version of the form.

ValueDescriptionN%
0No5601.1
1Yes2200.4
Missing49,52698.4%
SGLT2INHIB - Diabetes medication - SGLT2 inhibitors
Col 84

Diabetes medications: SGLT2 Inhibitors (Jardiance, Invokana, Dapagliflozin)

Usage Notes:

Collected only on the REDCap version of the form.

ValueDescriptionN%
0No5891.2
1Yes460.1
Missing49,67198.7%
GLUCOPHAGE - Diabetes medication - glucophage
Col 85

Diabetes medications: Glucophage (Metformin)

Usage Notes:

Collected only on the REDCap version of the form.

ValueDescriptionN%
0No1940.4
1Yes6841.4
Missing49,42898.3%
NONINSULIN - Diabetes medication - non-insulin injections
Col 86

Diabetes medications: Non-Insulin Injections or GLP1 Agonists (Examples: Exenatide, Byetta, Ozempic, Victoza, Trulicity)

Usage Notes:

Collected only on the REDCap version of the form.

ValueDescriptionN%
0No5731.1
1Yes610.1
Missing49,67298.7%
SULFONYLUREA - Diabetes medication - sulfonylurea
Col 87

Diabetes medications: Sulfonylurea (Examples: Glucotrol (Glipizide), Glimepiride, Chlorpropamide)

Usage Notes:

Collected only on the REDCap version of the form.

ValueDescriptionN%
0No4730.9
1Yes2040.4
Missing49,62998.7%
DIABORALOTH - Diabetes medication - other oral medications
Col 88

Diabetes medications: Other oral medications (Examples: Avandia, Prandin, Januvia, Starlix, Actos)

Usage Notes:

Collected only on the REDCap version of the form.

ValueDescriptionN%
0No5391.1
1Yes1290.3
Missing49,63898.7%
DIABMEDOTH - Diabetes medication - other prescriptions
Col 89

Diabetes medications: Other diabetes medication(s)

Usage Notes:

Collected only on the REDCap version of the form.

ValueDescriptionN%
0No5421.1
1Yes1060.2
Missing49,65898.7%
CANCERMED - Currently taking medications for cancer
Col 90

Are you taking prescription medications for any of the following conditions? Mark all that apply. Cancer.

ValueDescriptionN%
0No31,42962.5
1Yes1,3592.7
Missing17,51834.8%
AUTOIMMED - Currently taking medications for autoimmune diseases
Col 91

Are you taking prescription medications for any of the following conditions? Mark all that apply. Autoimmune diseases (lupus, rheumatoid arthritis, Crohn's disease).

ValueDescriptionN%
0No30,71561.1
1Yes2,0734.1
Missing17,51834.8%
MEDSOTH - Currently taking medications for other conditions
Col 92

Are you taking prescription medications for any of the following conditions? Mark all that apply. Other conditions.

ValueDescriptionN%
0No18,57536.9
1Yes14,21328.3
Missing17,51834.8%
GETRX - How do you get prescriptions
Col 93

How do you get your prescription medications now?

ValueDescriptionN%
1Myself at a local pharmacy19,28738.3
2Medications delivered13,65627.1
3Rely on others to get my medications3,2346.4
4Facility provides medications1,0742.1
8Other ways of getting medications1,3422.7
Missing11,71323.3%
GETRXCHNG - Has way of getting prescription meds changed since March 2020
Col 94

Has the way you get your prescription medications changed since March 2020?

ValueDescriptionN%
0No37,28174.1
1Yes4,0318
Missing8,99417.9%
OTCPAINMED - Routinely take over the counter pain/anti-inflammatory medications
Col 95

Do you take any over-the-counter pain/anti-inflammatory medications on a routine basis (at least 3 days per week)?

ValueDescriptionN%
0No30,86661.4
1Yes16,50632.8
9Unsure7561.5
Missing2,1784.3%
ASPIRIN - Regularly take aspirin
Col 96

Over the counter pain/anti-inflammatory medications: Which of the following do you take regularly? Aspirin (Examples: Bayer, Bufferin).

ValueDescriptionN%
0No11,10622.1
1Yes4,7529.4
Missing34,44868.5%
IBUPROFEN - Regularly take ibuprofen
Col 97

Over the counter pain/anti-inflammatory medications: Which of the following do you take regularly? Ibuprofen (Examples: Motrin, Advil).

ValueDescriptionN%
0No12,92225.7
1Yes2,9365.8
Missing34,44868.5%
ACETAMINOPHEN - Regularly take acetaminophen
Col 98

Over the counter pain/anti-inflammatory medications: Which of the following do you take regularly? Acetaminophen (Example: Tylenol).

ValueDescriptionN%
0No6,67913.3
1Yes9,17918.2
Missing34,44868.5%
NAPROXEN - Regularly take naproxen
Col 99

Over the counter pain/anti-inflammatory medications: Which of the following do you take regularly? Naproxen (Example: Aleve).

ValueDescriptionN%
0No14,04527.9
1Yes1,8133.6
Missing34,44868.5%
OTCPAINMEDOTH - Routinely take other over the counter pain/anti-inflammatory medications
Col 100

Over the counter pain/anti-inflammatory medications: Which of the following do you take regularly? Other.

ValueDescriptionN%
0No14,81929.5
1Yes1,0392.1
Missing34,44868.5%
RXFILLDELAY - Delays getting prescriptions filled
Col 101

Are you experiencing any new difficulties in taking medication(s) since the COVID-19 pandemic started? Mark all that apply. Delays in getting prescripts filled/refilled.

ValueDescriptionN%
0No3,1196.2
1Yes1,8723.7
Missing45,31590.1%
RXTAKEDELAY - Delaying or not taking medications
Col 102

Are you experiencing any new difficulties in taking medication(s) since the COVID-19 pandemic started? Mark all that apply. Delaying or not taking medication.

ValueDescriptionN%
0No4,6049.2
1Yes3870.8
Missing45,31590.1%
NOMEDHELP - No longer have someone to help me take medications
Col 103

Are you experiencing any new difficulties in taking medication(s) since the COVID-19 pandemic started? Mark all that apply. No longer having someone to help me take my medications.

ValueDescriptionN%
0No4,6579.3
1Yes3340.7
Missing45,31590.1%
DIFFPAYMED - Having difficulty paying for medications
Col 104

Are you experiencing any new difficulties in taking medication(s) since the COVID-19 pandemic started? Mark all that apply. Paying for medications.

ValueDescriptionN%
0No4,1928.3
1Yes7991.6
Missing45,31590.1%
DIFFMEDOTH - Having other difficulties with taking medications
Col 105

Are you experiencing any new difficulties in taking medication(s) since the COVID-19 pandemic started? Mark all that apply. Other.

ValueDescriptionN%
0No3,0686.1
1Yes1,9233.8
Missing45,31590.1%
HLTHAPPTS - Had health care appointments scheduled from March 2020 till now
Col 106

From March 2020 until now, did you have any health care appointments scheduled?

ValueDescriptionN%
0No9,60519.1
1Yes38,15975.9
9Unsure2630.5
Missing2,2794.5%
APPTCANC - Health care appointment cancelled
Col 107

Did your health care provider cancel, reschedule or convert your appointment to a telephone or online/video visit (telehealth)? Mark all that apply. Yes, at least one was cancelled.

ValueDescriptionN%
0No26,64753
1Yes10,21820.3
Missing13,44126.7%
APPTRESCH - Health care appointment rescheduled
Col 108

Did your health care provider cancel, reschedule or convert your appointment to a telephone or online/video visit (telehealth)? Mark all that apply. Yes, at least one was rescheduled.

ValueDescriptionN%
0No23,02445.8
1Yes13,84127.5
Missing13,44126.7%
APPTPHONE - Health care appointment converted to telephone or online
Col 109

Did your health care provider cancel, reschedule or convert your appointment to a telephone or online/video visit (telehealth)? Mark all that apply. Yes, at least one was converted to telephone or online/video visit.

ValueDescriptionN%
0No20,08839.9
1Yes16,77733.3
Missing13,44126.7%
APPTNOCHNG - No health care appointments changed
Col 110

Did your health care provider cancel, reschedule or convert your appointment to a telephone or online/video visit (telehealth)? Mark all that apply. None of them changed.

ValueDescriptionN%
0No27,35654.4
1Yes9,50918.9
Missing13,44126.7%
AVOIDEDDR - Decided not to go to doctor or hospital to avoid COVID-19 exposure
Col 111

Have you decided not to go to the doctor or hospital when you normally would have gone, to avoid the potential of being exposed to COVID-19?

ValueDescriptionN%
0No36,63872.8
1Yes11,88223.6
Missing1,7863.6%
DIFFGETCARE - How much difficulty getting routine care since March 2020
Col 112

In general, how much difficulty have you had getting routine medical care since March 2020?

ValueDescriptionN%
1None36,81173.2
2Some10,68621.2
3Much7841.6
4Unable or very difficult5001
Missing1,5253%
PANDEMICCONC - How concerned about the COVID-19 pandemic
Col 113

In general, how concerned are you about the COVID-19 pandemic?

ValueDescriptionN%
1Not at all concerned3,3026.6
2Somewhat concerned20,46140.7
3Very concerned24,85049.4
Missing1,6933.4%
CONCC19RISK - Pandemic causing concerns about risk of getting COVID-19 infection
Col 114

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. My risk of getting a COVID-19 infection.

ValueDescriptionN%
0No19,07337.9
1Yes31,23362.1
CONCC19RISKFAM - Pandemic causing concerns about family getting COVID-19 infection
Col 115

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. The risk of family members or friends getting a COVID-19 infection.

ValueDescriptionN%
0No16,45532.7
1Yes33,85167.3
CONCGETHLTHCARE - Pandemic causing concerns about getting healthcare
Col 116

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. Getting the health care that I need.

ValueDescriptionN%
0No44,50688.5
1Yes5,80011.5
CONCGETFOOD - Pandemic causing concerns about getting adequate food
Col 117

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. Getting adequate food.

ValueDescriptionN%
0No48,90897.2
1Yes1,3982.8
CONCGETEXER - Pandemic causing concerns about getting enough exercise
Col 118

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. Getting enough exercise/physical activity.

ValueDescriptionN%
0No38,59276.7
1Yes11,71423.3
CONCGETSLEEP - Pandemic causing concerns about getting enough sleep
Col 119

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. Getting the sleep/rest I need.

ValueDescriptionN%
0No46,43492.3
1Yes3,8727.7
CONCHOUSING - Pandemic causing concerns about adequate housing
Col 120

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. Having adequate housing.

ValueDescriptionN%
0No49,99799.4
1Yes3090.6
CONCMONEY - Pandemic causing concerns about having enough money
Col 121

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. Having enough money to cover my needs.

ValueDescriptionN%
0No47,87995.2
1Yes2,4274.8
CONCSAFETY - Pandemic causing concerns about personal safety
Col 122

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. My personal safety.

ValueDescriptionN%
0No42,00183.5
1Yes8,30516.5
CONCSAFETYFAM - Pandemic causing concerns about health/safety of family/friends
Col 123

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. The health and safety of my family and friends.

ValueDescriptionN%
0No20,69141.1
1Yes29,61558.9
CONCFINANC - Pandemic causing concerns about financial security
Col 124

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. My financial security.

ValueDescriptionN%
0No46,44892.3
1Yes3,8587.7
CONCFINANCFAM - Pandemic causing concerns about financial security of family
Col 125

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. The financial security of my family.

ValueDescriptionN%
0No45,06789.6
1Yes5,23910.4
CONCBEWITHFAM - Pandemic causing concerns about ability to be with family/friends
Col 126

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. My ability to be with friends and family.

ValueDescriptionN%
0No19,41838.6
1Yes30,88861.4
CONCNATIONECON - Pandemic causing concerns about the nation and economy
Col 127

Is the COVID-19 pandemic causing you concerns about any of the following? Mark all that apply. The nation and the economy more generally.

ValueDescriptionN%
0No15,37930.6
1Yes34,92769.4
FELTFEARFUL - In the past 7 days, felt fearful
Col 128

How often would the following statements apply to you in the past 7 days... I felt fearful

ValueDescriptionN%
1Never21,36542.5
2Rarely13,34326.5
3Sometimes9,98319.8
4Often1,6663.3
5Always2100.4
Missing3,7397.4%
HARDTOFOCUS - In the past 7 days, found it hard to focus
Col 129

How often would the following statements apply to you in the past 7 days... I found it hard to focus on anything other than my anxiety

ValueDescriptionN%
1Never28,38256.4
2Rarely10,74121.4
3Sometimes5,02010
4Often9621.9
5Always1170.2
Missing5,08410.1%
WORRYOVWHELM - In the past 7 days, my worries overwhelmed me
Col 130

How often would the following statements apply to you in the past 7 days... My worries overwhelmed me

ValueDescriptionN%
1Never31,65762.9
2Rarely8,86117.6
3Sometimes3,8797.7
4Often7441.5
5Always1010.2
Missing5,06410.1%
FELTUNEASY - In the past 7 days, felt uneasy
Col 131

How often would the following statements apply to you in the past 7 days... I felt uneasy

ValueDescriptionN%
1Never18,09036
2Rarely13,51926.9
3Sometimes11,83523.5
4Often2,5005
5Always2880.6
Missing4,0748.1%
NOCONTROL - In past 4 weeks, felt unable to control things in life
Col 132

In the past 4 weeks how often have you felt... That you were unable to control the important things in your life?

ValueDescriptionN%
1Never18,90837.6
2Almost never12,86325.6
3Sometimes11,94523.7
4Fairly often2,4334.8
5Very often9261.8
Missing3,2316.4%
CONFIDENT - In the past 4 weeks, felt confident about handling problems
Col 133

In the past 4 weeks how often have you felt... confident about your ability to handle your personal problems?

ValueDescriptionN%
1Never7,92315.7
2Almost never5,65011.2
3Sometimes7,77815.5
4Fairly often9,50018.9
5Very often15,07630
Missing4,3798.7%
GOINGYOURWAY - In past 4 weeks, felt things were going your way
Col 134

In the past 4 weeks how often have you felt... That things were going your way?

ValueDescriptionN%
1Never4,3288.6
2Almost never4,2818.5
3Sometimes12,91025.7
4Fairly often16,52132.8
5Very often7,86515.6
Missing4,4018.7%
DIFFPILING - In past 4 weeks, felt difficulties piling up
Col 135

In the past 4 weeks how often have you felt... That difficulties were piling up so high that you could not overcome them?

ValueDescriptionN%
1Never28,54256.7
2Almost never11,05922
3Sometimes5,58311.1
4Fairly often9421.9
5Very often3470.7
Missing3,8337.6%
WASHHANDS - Since March 2020, steps taken to reduce COVID-19 risk - washing hands frequently
Col 136

Since March 2020, what steps have you taken to reduce your risk of being infected by COVID-19? Mark all that apply. Washing hands frequently.

ValueDescriptionN%
0No4,7669.5
1Yes45,54090.5
NOTTOUCHFACE - Since March 2020, steps taken to reduce COVID-19 risk - not touching face
Col 137

Since March 2020, what steps have you taken to reduce your risk of being infected by COVID-19? Mark all that apply. Trying not to touch my face.

ValueDescriptionN%
0No17,82535.4
1Yes32,48164.6
DISINFECT - Since March 2020, steps taken to reduce COVID-19 risk - disinfecting surfaces frequently
Col 138

Since March 2020, what steps have you taken to reduce your risk of being infected by COVID-19? Mark all that apply. Disinfecting surfaces frequently.

ValueDescriptionN%
0No24,80649.3
1Yes25,50050.7
DISTANCING - Since March 2020, steps taken to reduce COVID-19 risk - physical distancing
Col 139

Since March 2020, what steps have you taken to reduce your risk of being infected by COVID-19? Mark all that apply. Maintaining a physical distance from people outside my household.

ValueDescriptionN%
0No5,45010.8
1Yes44,85689.2
MASKING - Since March 2020, steps taken to reduce COVID-19 risk - wearing mask in public
Col 140

Since March 2020, what steps have you taken to reduce your risk of being infected by COVID-19? Mark all that apply. Wearing a face mask in public.

ValueDescriptionN%
0No3,4386.8
1Yes46,86893.2
GLOVES - Since March 2020, steps taken to reduce COVID-19 risk - wearing gloves in public
Col 141

Since March 2020, what steps have you taken to reduce your risk of being infected by COVID-19? Mark all that apply. Wearing gloves in public

ValueDescriptionN%
0No40,71680.9
1Yes9,59019.1
NOINPERSONACT - Since March 2020, steps taken to reduce COVID-19 risk - avoiding in-person activities
Col 142

Since March 2020, what steps have you taken to reduce your risk of being infected by COVID-19? Mark all that apply. Avoiding in-person social or religious activities.

ValueDescriptionN%
0No13,11226.1
1Yes37,19473.9
NOINPERSONSHOP - Since March 2020, steps taken to reduce COVID-19 risk - avoiding or limiting in-person shopping
Col 143

Since March 2020, what steps have you taken to reduce your risk of being infected by COVID-19? Mark all that apply. Avoiding or limiting in-person shopping.

ValueDescriptionN%
0No15,10530
1Yes35,20170
NOHANDSHAKE - Since March 2020, steps taken to reduce COVID-19 risk - avoiding shaking hands
Col 144

Since March 2020, what steps have you taken to reduce your risk of being infected by COVID-19? Mark all that apply. Avoiding shaking hands.

ValueDescriptionN%
0No9,72119.3
1Yes40,58580.7
STAYHOME - Since March 2020, steps taken to reduce COVID-19 risk - staying home
Col 145

Since March 2020, what steps have you taken to reduce your risk of being infected by COVID-19? Mark all that apply. Staying home.

ValueDescriptionN%
0No10,64021.2
1Yes39,66678.8
COMMUNICATE - How often communicate with others outside your home
Col 146

How often do you communicate with others who live outside your home?

ValueDescriptionN%
1Every day23,04745.8
2Several times per week16,22232.2
31-2 times per week5,41210.8
4Once per week1,9863.9
5Rarely or never1,6493.3
Missing1,9904%
COMMCHNG - Compared to months before outbreak, communication is
Col 147

Compared to the months before the outbreak began, would you say this is...

ValueDescriptionN%
1More often than before7,56315
2About the same as before27,77855.2
3Less often than before12,97125.8
Missing1,9944%
COMMINPERSON - Staying in touch with others by - speaking in person
Col 148

How are you staying in touch with others who do not live with you? Mark all that apply. Speaking in person.

ValueDescriptionN%
0No29,99259.6
1Yes19,11238
Missing1,2022.4%
COMMPHONE - Staying in touch with others by - telephone
Col 149

How are you staying in touch with others who do not live with you? Mark all that apply. By telephone.

ValueDescriptionN%
0No1,6573.3
1Yes47,44794.3
Missing1,2022.4%
COMMVIDEO - Staying in touch with others by - video calls
Col 150

How are you staying in touch with others who do not live with you? Mark all that apply. With video calls.

ValueDescriptionN%
0No32,92465.4
1Yes16,18032.2
Missing1,2022.4%
COMMEMAIL - Staying in touch with others by - email
Col 151

How are you staying in touch with others who do not live with you? Mark all that apply. By email.

ValueDescriptionN%
0No19,13538
1Yes29,96959.6
Missing1,2022.4%
COMMSOCMEDIA - Staying in touch with others by - social media
Col 152

How are you staying in touch with others who do not live with you? Mark all that apply. By social media (Examples: Facebook, Instagram).

ValueDescriptionN%
0No33,77267.1
1Yes15,33230.5
Missing1,2022.4%
COMMPOSTAL - Staying in touch with others by - postal mail
Col 153

How are you staying in touch with others who do not live with you? Mark all that apply. By postal mail.

ValueDescriptionN%
0No33,25366.1
1Yes15,85131.5
Missing1,2022.4%
COMMOTH - Staying in touch with others by - other ways
Col 154

How are you staying in touch with others who do not live with you? Mark all that apply. Other.

ValueDescriptionN%
0No45,41490.3
1Yes3,6907.3
Missing1,2022.4%
ALCDRINKS - In past 3 months, number of alcoholic drinks had on average
Col 155

In the past 3 months, how many drinks containing alcohol have you had on average?

ValueDescriptionN%
1None25,94651.6
2At most one drink each week9,20218.3
32-4 drinks per week6,20712.3
45-7 drinks per week6,54913
5More than 7 drinks per week1,6893.4
Missing7131.4%
SMOKENOW - Currently smoke regular or electronic cigarettes
Col 156

Do you smoke regular or electronic cigarettes now?

ValueDescriptionN%
0No48,94397.3
1Yes6321.3
Missing7311.5%
PHYSACTCHNG - Over the past month, level of physical activity since COVID-19 pandemic began
Col 157

Over the past month, how would you describe your level of physical activity or exercise, compared to your average physical activity level before the COVID-19 pandemic began?

ValueDescriptionN%
1Much less12,75325.4
2Somewhat less14,19928.2
3About the same18,46136.7
4Somewhat more3,2566.5
5Much more8581.7
Missing7791.5%
WALKOUTSIDE - In the past month, how often walked outside the home for at least 5 minutes
Col 158

Think about the walking you do outside the home. In the past month, how often haveyou walked outside the home (or done indoor activity equivalent to walking outside, to accumulate steps) for at least 5 minutes without stopping.

ValueDescriptionN%
1Rarely or never11,48922.8
21 time each week5,17510.3
32 to 3 times each week11,51322.9
44 to 6 times per week12,06924
57 or more times per week9,10918.1
Missing9511.9%
FOODTOOTHERS - New actions taken to help during COVID-19 pandemic - getting food or medicine for others
Col 159

Which of the following new actions are you taking to help your family, friends or your community during this COVID-19 pandemic? Mark all that apply. Getting food or medicine for others.

ValueDescriptionN%
0No44,03787.5
1Yes4,8979.7
Missing1,3722.7%
PROVCHILDCARE - New actions taken to help during COVID-19 pandemic - providing childcare
Col 160

Which of the following new actions are you taking to help your family, friends or your community during this COVID-19 pandemic? Mark all that apply. Providing childcare.

ValueDescriptionN%
0No47,93995.3
1Yes9952
Missing1,3722.7%
DONATEBLOOD - New actions taken to help during COVID-19 pandemic - donating blood
Col 161

Which of the following new actions are you taking to help your family, friends or your community during this COVID-19 pandemic? Mark all that apply. Donating blood.

ValueDescriptionN%
0No48,16295.7
1Yes7721.5
Missing1,3722.7%
DONATEMONEY - New actions taken to help during COVID-19 pandemic - donating money
Col 162

Which of the following new actions are you taking to help your family, friends or your community during this COVID-19 pandemic? Mark all that apply. Donating money.

ValueDescriptionN%
0No34,11567.8
1Yes14,81929.5
Missing1,3722.7%
MAKEMASKS - New actions taken to help during COVID-19 pandemic - making masks
Col 163

Which of the following new actions are you taking to help your family, friends or your community during this COVID-19 pandemic? Mark all that apply. Making masks for others

ValueDescriptionN%
0No43,45286.4
1Yes5,48210.9
Missing1,3722.7%
CONTACTFAMFR - New actions taken to help during COVID-19 pandemic - contacting friends/family
Col 164

Which of the following new actions are you taking to help your family, friends or your community during this COVID-19 pandemic? Mark all that apply. Contacting friends or family to keep in touch.

ValueDescriptionN%
0No14,27828.4
1Yes34,65668.9
Missing1,3722.7%
ACTIONSOTH - New actions taken to help during COVID-19 pandemic - other actions
Col 165

Which of the following new actions are you taking to help your family, friends or your community during this COVID-19 pandemic? Mark all that apply. Other.

ValueDescriptionN%
0No46,98393.4
1Yes1,9513.9
Missing1,3722.7%
NONEWACTION - New actions taken to help during COVID-19 pandemic - no new actions
Col 166

Which of the following new actions are you taking to help your family, friends or your community during this COVID-19 pandemic? Mark all that apply. I have not taken any new action.

ValueDescriptionN%
0No38,48676.5
1Yes10,44820.8
Missing1,3722.7%
PSSSHT - Perceived Stress Scale Construct
Col 167

Computed from Form 190, questions 27-30. Source: Four-item version of the Perceived Stress Scale (Cohen 1983). After reverse coding the responses to questions 28 and 29, and subtracting one from each response, the responses to all four items are summed. The scale ranges from 0 to 16, where a higher score indicates more perceived stress.

NMissingMinMaxMeanStdDev
43,0337,2730164.7852.923
PROMISANXIETYSCORE - PROMIS anxiety T-score
Col 168

Computed from Form 190, questions 23-26. Source: Four-item version of the PROMIS Anxiety score (Pilkonis 2011). Responses to all four items are summed to obtain a raw score. The raw score is then referred to a scoring table (PROMIS Anxiety Scoring Manual) to convert the total raw score into a T-score. The scoring table is only valid when participants answer all questions. Scores for participants with missing responses were submitted to the Health Measures Scoring Service (https://www.assessmentcenter.net/ac_scoringservice) to obtain final T-scores.

Usage Notes:

A higher PROMIS T-score represents greater anxiety. The T-score rescales the raw score into a standardized T-score. In a large sample of the US general population, the anxiety T-score has a mean of 50 and a standard deviation (SD) of 10. An anxiety T-score of 60 is one SD worse than average.

NMissingMinMaxMeanStdDev
48,1632,14340.381.650.9468.402
PROMISALLITEMS - PROMIS T-score computed with complete data
Col 169

Identifies participants with complete responses for the PROMIS anxiety T-score.

Usage Notes:

Coded 1 if all items for the PROMISANXIETYSCORE were complete; coded 0 if responses to 1 to 3 of the questions were missing.

ValueDescriptionN%
0No4,7259.4
1Yes43,43886.3
Missing2,1434.3%
F190REGION - Region of residence at survey completion
Col 170
ValueDescriptionN%
1Northeast10,69021.2
2South13,57427
3Midwest11,14822.2
4West14,75829.3
Missing1360.3%
RUCA2CAT - Rural-Urban Residence (RUCA class)
Col 171
Usage Notes:

Based on the 2010 USDA-ERS Rural Urban Commuting Area (RUCA) codes. Categories coded as follows:

  1. Urban (1.0,1.1, 2, 2.1, 3, 4.1, 5.1, 7.1, 8.1, 9.1,10.1)
  2. Large rural (4, 4.2, 5, 5.2, 6, 6.1);
  3. Small rural (7, 7.2, 7.3, 7.4, 8, 8.2, 8.3, 8.4, 9, 9.2)
  4. Isolated small rural (10.0, 10.2, 10.3, 10.4, 10.5, 10.6)
ValueDescriptionN%
1Urban46,20391.8
2Large rural2,1894.4
3Small rural9862
4Isolated small rural7891.6
Missing1390.3%