This document can be used to prepare or evaluate feasibility of ancillary study proposals and paper proposals, but is NOT intended for publication.

Form 159 Supplemental Questionnaire 2018

File Name	Data as of	Population	Data collected	One row per	Rows
f159_ctos_inv.dat	2/28/2020	CT+OS	Ext2	Participant	55,863

See Psychosocial/Behavioral constructs for information about how the computed variables on Form 37-Thoughts and Feelings, Form 38-Daily Life, Form 151-Activities of Daily Life, Form 155-Lifestyle Questionnaire and supplemental questionnaires 157 and 159 are constructed.

ID - Participant ID

Col 1

N	Missing	Min	Max	Mean	StdDev
55,863	0	100,001	299,995	200,331.501	57,638.533

F159VTYP - Visit Type

Col 2

Value	Description	N	%
3	Annual Visit	55,863	100

F159VY - Visit Year

Col 3

Visit year in which this form was collected.

N	Missing	Min	Max	Mean	StdDev
55,863	0	20	26	22.004	1.155

F159DAYS - F159 Days since randomization or enrollment

Col 4

N	Missing	Min	Max	Mean	StdDev
55,863	0	7,112	9,504	8,006.241	418.157

PHYSICALACT - In past year, physical activity level

Col 5

Over the past year, my physical activity level has:

Value	Description	N	%
1	Increased a lot	842	1.5
2	Increased somewhat	4,229	7.6
3	Not changed; remained about the same	25,066	44.9
4	Decreased somewhat	17,437	31.2
5	Decreased a lot	4,663	8.3
	Missing	3,626	6.5%

TRBSLEEP - Did you have trouble falling asleep

Col 6

These questions are about your sleep habits. Please mark one of the answers for each of the following questions. Choose the answer that best describes how often you experienced the situation in the past 4 weeks.

Did you have trouble falling asleep?

Value	Description	N	%
1	No, not in past 4 weeks	27,683	49.6
2	Yes, less than once a week	10,644	19.1
3	Yes, 1 or 2 times a week	9,392	16.8
4	Yes, 3 or 4 times a week	4,216	7.5
5	Yes, 5 or more times a week	2,559	4.6
	Missing	1,369	2.5%

WAKENGHT - Did you wake up several times

Col 7

Did you wake up several times at night?

Value	Description	N	%
1	No, not in past 4 weeks	11,089	19.9
2	Yes, less than once a week	6,459	11.6
3	Yes, 1 or 2 times a week	11,640	20.8
4	Yes, 3 or 4 times a week	10,501	18.8
5	Yes, 5 or more times a week	14,446	25.9
	Missing	1,728	3.1%

UPEARLY - Did you wake up earlier than planned

Col 8

Did you wake up earlier than you planned to?

Value	Description	N	%
1	No, not in past 4 weeks	24,057	43.1
2	Yes, less than once a week	10,031	18
3	Yes, 1 or 2 times a week	10,189	18.2
4	Yes, 3 or 4 times a week	5,742	10.3
5	Yes, 5 or more times a week	3,976	7.1
	Missing	1,868	3.3%

BACKSLP - Did you have trouble getting back to sleep

Col 9

Did you have trouble getting back to sleep after you woke up too early?

Value	Description	N	%
1	No, not in past 4 weeks	25,795	46.2
2	Yes, less than once a week	10,442	18.7
3	Yes, 1 or 2 times a week	9,926	17.8
4	Yes, 3 or 4 times a week	5,109	9.1
5	Yes, 5 or more times a week	2,827	5.1
	Missing	1,764	3.2%

QUALSLP - Typical night`s sleep

Col 10

Overall, was your typical night’s sleep during the past 4 weeks:

Value	Description	N	%
1	Very restless	1,086	1.9
2	Restless	7,067	12.7
3	Average quality	23,963	42.9
4	Sound or restful	16,629	29.8
5	Very sound or restful	6,302	11.3
	Missing	816	1.5%

SWELLFEET - In past 2 weeks, how many times had swelling in feet, ankles or legs when woke in morning

Col 11

Over the past 2 weeks, how many times did you have swelling in your feet, ankles or legs when you woke up in the morning?

Value	Description	N	%
1	Every morning	2,764	4.9
2	3 or more times a week, but not every day	2,406	4.3
3	1-2 times a week	2,845	5.1
4	Less than once a week	5,681	10.2
5	Never over the past 2 weeks	41,265	73.9
	Missing	902	1.6%

FATIGUE - In past 2 weeks, how many times fatigue limited ability

Col 12

Over the past 2 weeks, on average, how many times has fatigue limited your ability to do what you want?

Value	Description	N	%
1	Several times per day	3,346	6
2	At least once a day	5,859	10.5
3	3 or more times a week, but not every day	6,496	11.6
4	1-2 times a week	8,697	15.6
5	Less than once a week	12,021	21.5
6	Never over the past 2 weeks	18,546	33.2
	Missing	898	1.6%

SHORTBREATH - In past 2 weeks, how many times shortness of breath limited ability

Col 13

Over the past 2 weeks, on average, how many times has shortness of breath limited your ability to do what you wanted?

Value	Description	N	%
1	All of the time	910	1.6
2	Several times per day	1,549	2.8
3	At least once a day	2,057	3.7
4	3 or more times a week, but not every day	2,475	4.4
5	1-2 times a week	3,107	5.6
6	Less than once a week	7,198	12.9
7	Never over the past 2 weeks	37,803	67.7
	Missing	764	1.4%

BPMEDEVER - Ever taken medication for blood pressure

Col 14

Have you ever taken medication for blood pressure?

Value	Description	N	%
0	No	17,759	31.8
1	Yes	35,055	62.8
	Missing	3,049	5.5%

BPMEDNOW - Currently taking medication for blood pressure

Col 15

Are you currently taking medication for blood pressure?

Usage Notes:

Sub-question of F159 V1 Q10 "Have your ever taken medication for blood pressure?"

Value	Description	N	%
0	No	7,615	13.6
1	Yes	29,666	53.1
	Missing	18,582	33.3%

BPMEDINCREASE - In past 2 years, blood pressure medication dose increased

Col 16

In the past 2 years, has your blood pressure medicine dose increased?

Usage Notes:

Sub-question of F159 V1 Q11 "Are you currently taking medication for blood pressure?"

Value	Description	N	%
0	No	20,894	37.4
1	Yes	6,804	12.2
	Missing	28,165	50.4%

BPMEDDECREASE - In past 2 years, blood pressure medication dose decreased

Col 17

In the past 2 years, has your blood pressure medicine dose decreased?

Usage Notes:

Sub-question of F159 V1 Q11 "Are you currently taking medication for blood pressure?

Value	Description	N	%
0	No	21,907	39.2
1	Yes	2,945	5.3
	Missing	31,011	55.5%

BPMEDSTART - In past 2 years, started new medication for blood pressure

Col 18

In the past 2 years, have you started a new medication for blood pressure?

Usage Notes:

Sub-question of F159 V1 Q11 "Are you currently taking medication for blood pressure?

Value	Description	N	%
0	No	21,486	38.5
1	Yes	5,294	9.5
	Missing	29,083	52.1%

BPMEDSTOP - In past 2 years, stopped medication for blood pressure

Col 19

In the past 2 years, was your medication for blood pressure stopped?

Usage Notes:

Sub-question of F159 V1 Q11 "Are you currently taking medication for blood pressure?

Value	Description	N	%
0	No	24,194	43.3
1	Yes	828	1.5
	Missing	30,841	55.2%

CHOLMEDEVER - Ever taken medication for cholesterol

Col 20

Have you ever taken medication for cholesterol?

Value	Description	N	%
0	No	23,551	42.2
1	Yes	29,316	52.5
	Missing	2,996	5.4%

CHOLMEDNOW - Currently taking medication for cholesterol

Col 21

Are you currently taking medication for cholesterol?

Usage Notes:

Sub-question of F159 V1 Q12 "Have you ever taken medication for cholesterol?"

Value	Description	N	%
0	No	13,745	24.6
1	Yes	21,217	38
	Missing	20,901	37.4%

CHOLMEDINCREASE - In past 2 years, cholesterol medication dose increased

Col 22

In the past 2 years, has your cholesterol medication dose increased?

Usage Notes:

Sub-question of F159 V1 Q13 "Are you currently taking medication for cholesterol?"

Value	Description	N	%
0	No	18,129	32.5
1	Yes	2,792	5
	Missing	34,942	62.5%

CHOLMEDDECREASE - In past 2 years, cholesterol medication dose decreased

Col 23

In the past 2 years, has your cholesterol medication dose decreased?

Usage Notes:

Sub-question of F159 V1 Q13 "Are you currently taking medication for cholesterol?"

Value	Description	N	%
0	No	17,668	31.6
1	Yes	1,478	2.6
	Missing	36,717	65.7%

CHOLMEDSTART - In past 2 years, started new medication for cholesterol

Col 24

In the past 2 years, have you started a new medication for cholesterol?

Usage Notes:

Sub-question of F159 V1 Q13 "Are you currently taking medication for cholesterol?"

Value	Description	N	%
0	No	18,009	32.2
1	Yes	1,987	3.6
	Missing	35,867	64.2%

CHOLMEDSTOP - In past 2 years, stopped medication for cholesterol

Col 25

In the past 2 years, was your medication for cholesterol stopped?

Usage Notes:

Sub-question of F159 V1 Q13 "Are you currently taking medication for cholesterol?"

Value	Description	N	%
0	No	18,350	32.8
1	Yes	1,010	1.8
	Missing	36,503	65.3%

WEIGHT - Current weight, lb

Col 26

What is your current weight?

N	Missing	Min	Max	Mean	StdDev
51,881	3,982	66	411	150.088	31.758

LOST10LB2YRS - In past 2 years, lost more than 10 pounds

Col 27

Have you lost more than 10 pounds in the past 2 years?

Value	Description	N	%
0	No	38,952	69.7
1	Yes	13,217	23.7
	Missing	3,694	6.6%

TRYLOSEWEIGHT - In past 2 years, trying to lose weight

Col 28

Were you trying to lose weight?

Usage Notes:

Sub-question of F159 V1 Q14.1 "Have you lost more than 10 pounds in the past 2 years?"

Value	Description	N	%
0	No	6,487	11.6
1	Yes	5,967	10.7
	Missing	43,409	77.7%

GAINED10LB2YRS - In past 2 years, gained more than 10 pounds

Col 29

Have you gained more than 10 pounds in the past 2 years?

Value	Description	N	%
0	No	44,583	79.8
1	Yes	6,140	11
	Missing	5,140	9.2%

TRYGAINWEIGHT - In past 2 years, trying to gain weight

Col 30

Were you trying to gain weight?

Usage Notes:

Sub-question of F159 V1 Q14.2 "Have you gained more than 10 pounds in the past 2 years?"

Value	Description	N	%
0	No	5,175	9.3
1	Yes	308	0.6
	Missing	50,380	90.2%

EYEDR - Last time saw an eye doctor

Col 31

When was the last time you saw an eye doctor?

Value	Description	N	%
1	Less than 12 months ago	41,316	74
2	12-24 months ago	9,298	16.6
3	More than 24 months ago	3,050	5.5
4	I do not see an eye doctor	552	1
	Missing	1,647	2.9%

MACDEGEN - Ever been told by eye doctor have age-related macular degeneration

Col 32

Have you ever been told by an eye doctor that you have age-related macular degeneration?

Value	Description	N	%
0	No	44,893	80.4
1	Yes	9,073	16.2
	Missing	1,897	3.4%

MACDEGENAGE - Age when diagnosed with macular degeneration

Col 33

How old were you when you were diagnosed with macular degeneration?

Usage Notes:

Sub-question of F159 V1 Q16 "Have you ever been told by an eye doctor that you have age-related macular degeneration?"
There are 31 participants included in the dataset who report an age at diagnosis of macular degeneration that is 1 year older than their age at the time of their Form 159. These values have been left as reported.

N	Missing	Min	Max	Mean	StdDev
8,479	47,384	40	100	78.125	8.91

WELLBEING - Current level of well-being

Col 34

Please think about your current level of well-being. When you think about well-being, think about your physical health, your emotional health, any challenges you are experiencing, the people in your life, and the opportunities or resources you have available to you. How would you describe your current level of well-being?

Value	Description	N	%
1	Excellent	6,349	11.4
2	Very good	21,249	38
3	Good	18,684	33.4
4	Fair	6,610	11.8
5	Poor	931	1.7
6	Very poor	231	0.4
	Missing	1,809	3.2%

SLPDSTRB - Sleep Disturbance Construct

Col 35

Computed from Form 159, questions 2-6. Sum of five components. Questions 2-5 range from 1-5 and are recoded to a 0-4 scale. Question 6 is recoded and reverse coded resulting in a range from 0-4 before summing. The summary score ranges from 0 to 20 where a higher score indicates greater sleep disturbance.

N	Missing	Min	Max	Mean	StdDev
51,246	4,617	0	20	7.026	4.518